It's been a while since an update. I suppose people think we disappeared. About two week s after the last post he started to get hand foot disease. I made him some cream and that helped a little. We went back on the 31st for chemo again. This time the neuropathy in his chest was not as severe. We started the gabapentin for it two days before chemo and it seem to keep the attacks at under control for the most part. He seemed to be getting more drained after chemo this time. His hands and feet are so red and raw he can barely walk on them or hold his toothbrush. By the 14th he was so tired he couldn't walk far or keep anything in him. I called his Oncologist because lomotil, pepto, and immodium were not working. They over nighted us a prescription for opium tincture that they said would help. It was the last thing they had to try for this. When we got the prescription and called the pharmacy there was nobody that would fill it. We were gonna have to wait till we came back on the 21st for chemo and get it filled there. By the night of the 16th he was dehydrated and stumbling. I took him to the er to get iv fluids. They also did morphine for the intense stomach pain. He seemed to look a little better Monday but, by Tuesday he was worse than before. We called the oncologist and they told us to bring him to urgent care at the cancer center. That was a worthless trip but, the next day his oncologist called and wanted to see him for himself. When we got there he took one look at him and said he absolutely should not be this bad after 3 treatments. Especially being this is the last week and he should be doing better before they start the next round. He looked at his hands and said they should not look even close to this until at least 6 months of chemo. Turns out Jody has a metabolic disorder and is lacking enough of one enzyme that breaks down the chemo pills. He has built a huge toxicity up with the xeloda and not has enteritis in the ileum. He has been admitted here at the cancer center and they are trying to keep him hydrated and the pain under control until he can eat and drink again.
They have taken him off the previous chemo and will wait a week to let his body rest before starting the new chemo. The one he starts on next week should not have the same effects. His oncologist said he should have much more of a quality of life than this and be able to work.
We should get to go home by the weekend and I will try to get on an update this when we get discharged.